I seem to always forget what to expect when it is time for my infusion. Well-I know what to expect when I get there and during, but leading up to it, I always forget about the day or two before when I have this slow building anxiety. I don’t regularly deal with anxiety, so when … Continue reading Pandemic Infusion
One year ago, I did my last Copaxone shot. From July 2015 until May 2019, I gave myself shots, three times a week, like clockwork to control my MS. I was first suggested to switch my therapy to a new and much more effective treatment in January 2019. I considered it for a while, and … Continue reading My Next Ocrevus Infusion-thoughts
Please stop telling me to wash my hands and I won’t have to worry about the coronavirus. Do you think that the 100k+ people that have it at this point didn’t wash their hands? None? Of course you should wash your hands. And yes it reduces the risk. But it is not 100% going to … Continue reading An unpopular opinion about COVID-19
I’m frustrated right now. I feel bad every single day. It’s been about three months of whatever this is. I feel nauseous. Exhausted. My ears are ringing. My head hurts more often than not. Sometimes it hurts to breathe. My numbness is not worse, but more regular. So mostly, nothing significant, but all together-ahhhh! Maybe … Continue reading My Check Engine Light is On
I apologize for the lack of writing or responding to things on here. I’ve just been in a really strange headspace lately, and I didn’t really feel like writing because I thought it would be a little bit darker than the way that I like to portray myself. I’ve been negative and “down” (that’s the … Continue reading Headspace
I can honestly say, June 18th, 2014 was the worst day of my life. But, wow, has it changed me for the better. On June 18, 2014 I woke up on day three of my body feeling weird and tingly, but this day was different. It had spread to the entire left side of my … Continue reading 5 Years of my MS Journey
See this empty syringe? That’s not just any empty syringe. That’s the LAST one I have to inject into my body, based on my current plans for my MS treatment. After almost 4 years of giving myself shots three times a week, I am switching drugs. I’m thankful to report this is a proactive measure, … Continue reading New Treatment
I share much less with my social media following than my blog, but today I gave them a little Wednesday Wisdom. I like to let them know what is going on. I like them to understand more about MS. Before I was diagnosed, I did not understand the disease or what it was, and especially … Continue reading I have MS, but MS doesn’t have me
For the past week I have spent way too much of my mental space thinking about that damn doctors appointment, and the future of my MS treatments. I am torn on my feelings on so many levels, and I am praying for answers to so many things. Let me bring you in on a secret, … Continue reading Decisions
Yesterday was an insanely busy day, but as promised, I have updates on my appointment with my new neurologist. This is lengthy, but so was my appointment! First of all, the almost two hour drive (each way) is not an issue for me. Everyone mentioned how awful that would be, but thankfully I am used … Continue reading My Dr. Appointment
Days with Andrea 