It’s 6:30am and I have been in bed for about 30 minutes delaying getting up. I’m heading to St Louis with my mom and my boys today so that I can see my brother, SIL and their girls. I am so excited.
But I am also annoyed. My left arm and left knee are really bothering me today. I kind of noticed it yesterday, but brushed it off. Today I worry it is going to limit what is supposed to be a fun and active day. This is life with MS.
I haven’t had an official relapse since I was diagnosed just over 4 years ago. And I’m thankful that a lot of the past year I have been mostly symptom free. But today doesn’t feel like it will be one of those days.
For me, MS has been such a wake up call. I am beyond in tune with my body. Almost in an unhealthy way. I am hyper aware of when something doesn’t feel right, and then I spend too much time wondering what is happening, if it will spread or get worse, or what tomorrow might bring.
4 years ago I would have cancelled all my plans and sat around sad all day. My 25 year old self would use this as an excuse to do nothing but have a pity party. That kind of mental place is not only lonely, but very self destructing. So I left it behind
Today I will listen to my body when it tells me to slow down. I will listen to my symptoms and not push my limits. I will go on my fun filled day, and not let it ruin everything we had planned. It’s not an excuse anymore.
This is my life. I have worked my ass off to become stronger than my MS. I’ll be damned if some chronic brain disease is going to take over my feelings and activities again
β€ MS Andrea Jackson
Yes! You go!! Itβs so tempting to wallow in anxiety of the next symptom but we have to live our lives and take back our power from this monster – smartly. Hope you had a great time. ππ
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