It’s 6:30am and I have been in bed for about 30 minutes delaying getting up. I’m heading to St Louis with my mom and my boys today so that I can see my brother, SIL and their girls. I am so excited.
But I am also annoyed. My left arm and left knee are really bothering me today. I kind of noticed it yesterday, but brushed it off. Today I worry it is going to limit what is supposed to be a fun and active day. This is life with MS.
I haven’t had an official relapse since I was diagnosed just over 4 years ago. And I’m thankful that a lot of the past year I have been mostly symptom free. But today doesn’t feel like it will be one of those days.
For me, MS has been such a wake up call. I am beyond in tune with my body. Almost in an unhealthy way. I am hyper aware of when something doesn’t feel right, and then I spend too much time wondering what is happening, if it will spread or get worse, or what tomorrow might bring.
4 years ago I would have cancelled all my plans and sat around sad all day. My 25 year old self would use this as an excuse to do nothing but have a pity party. That kind of mental place is not only lonely, but very self destructing. So I left it behind
Today I will listen to my body when it tells me to slow down. I will listen to my symptoms and not push my limits. I will go on my fun filled day, and not let it ruin everything we had planned. It’s not an excuse anymore.
This is my life. I have worked my ass off to become stronger than my MS. I’ll be damned if some chronic brain disease is going to take over my feelings and activities again
❤ MS Andrea Jackson